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The Journal of Edith May Jones
1892-1976
Writer's Block: Now I Lay Me Down to Sleep 
6th-May-2008 10:43 pm
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What is one thing you MUST do before you go to bed at night?

Submitted by [info]twink


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Unfortunately, in the land of the bipolar - some of you know it as manic-depressive - the one thing I absolutely must do before I go to bed at night is take my pills. I have discovered, and it's been a horrible discovery to make, that missing even one night of my pills means that my moods are way out of whack for several days. 

I find this upsetting on so many levels. I think the thing that I find the most distressing is the knowledge that I am sufficiently mentally ill that I can never miss a dose. I don't want to be this sick. Rationally, I understand that it's a physical illness, and that it's the same as a heart patient always taking their heart medicine, or a diabetic always taking their insulin, but because it's a mental illness, I always feel like I am just one dose of pills away from madness. There are so many "what ifs" that could result in me missing some doses of pills that I always carry extras, as I never want to end up as a crazed madwoman, talking to the birds in my home in the park. 

The other thing that bothers me is that I can never just fall asleep at night. I used to fall asleep in front of the TV a lot. John and I would go downstairs and watch TV and I'd get drowsy; he'd tuck me in and I'd spend the night there. That never happens anymore, can never happen again. It's a simple thing, but I miss it. My pills are powerful enough to sedate an elephant, so the option of taking them and then going downstairs and watching a movie isn't available.....so that lovely soporific falling asleep watching TV is gone forever, and it's something I used to love, something I found so comfortable. Now if I feel drowsy watching TV, it's bedtime, game over. 

As I've said before, and will say again, mental illness sucks.
Comments 
7th-May-2008 09:04 am (UTC)
My nighttime routine also contains my pills though happily the ones I am on are no longer sedating me horribly.
7th-May-2008 10:04 am (UTC)
Mental illness sucks indeed. My only brother was also diagnosed as being bipolar five years ago, and pills are such a big part of his routine - and ours. We always fear he might skip one because, as you very well know, it can have bad consequences in his mood for days.

However, there was this radio program I heard a year ago that changed my view on the big burden of taking pills and being so dependent on them. The show made me happy because they talked for over an hour about bipolar patients, and they made this chronology of how the problem was discovered, and which have been the ways to treat it over the years. And well, it was heartbreaking to hear the stories of some patients from many decades back, to get into their manias - and know that there was no remedy. There was nothing that could help them get a little stability so that they could carry on with their lives. And it made me so thankful that to realise there is this awareness about the illness now, and that big efforts have been made for people like you and my brother to have the normal life you deserve. So yep, as utterly annoying as the little things are, I kinda see them differently now.

I hope the comment wasn't upsetting in anyway. *hug* :)
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